Author Topic: Little Girl in need of Help - Please read (Read 1086 times)

StSanta · « **Reply #15 on:** December 20, 2001, 08:08:00 AM »

Hey Tac: I'm gonna forward this to my sister.

She's a med student with some odd interest in viruses and bacteria, and she probably knows people who've researched such things. She's also close to done (I think, never can figure out how much she has left). Am giving her the link now.

Hang in there bud!

Goth · « **Reply #16 on:** December 20, 2001, 12:37:00 PM »

Tac,

In my limited experience....and due to the fact that I don't really have much data to go on, I would be looking at chemical poisoning and there should be blood tests to check toxin levels. This sounds an aweful lot like a mercury or lead poisoning....probable ingestion. Really really need more info though to base any sound judgement on this.

FlyingDuckSittingSwan · « **Reply #17 on:** December 20, 2001, 01:06:00 PM »

Sad. Very sad.

I'd offer a prayer, but I don't belive in God, I'm afraid. When I read things like this it restores my belief that there isn't a God. Surely if there was one, these things wouldn't happen? Anyway, it's hard for us non-religious types to know what to do in situations like this. People who can pray still feel hopeless, imagine us not being able to do even that.
I can only send some positive energy your way, what can I say?

Christmas is the most exciting time for kids. This is just too sad.

p.s. Never give up hope

sax · « **Reply #18 on:** December 20, 2001, 01:16:00 PM »

Prayers are power, add mine to the force.

Sax
13th Tas

Rude · « **Reply #19 on:** December 20, 2001, 01:47:00 PM »

She has mine and my families prayers.

My son went thru menengitus and we almost lost him. Our doctor was Dr. Carl Phansteil in Tulsa, Oklahoma. He knew immediately what was wrong. I do not have his number, but 1-918-555-1212 will have it.

God loves this child...pray

Tac · « **Reply #20 on:** December 20, 2001, 01:53:00 PM »

Thnx guys. I've given them the URL to this forum. If you have anything post it here or Priv Msg it to me or e-mail it to me, ill foward it to them.

FlyingDuckSittingSwan · « **Reply #21 on:** December 20, 2001, 03:17:00 PM »

As anyone who's ever been to a doctor or needed medical treatment will know, sometimes they can make mistakes. And at the end of the day, if the doctors are treating someone you love, when it all comes down to it, we all like to be a bit more informed, right? So I found a link I found on Fungal Meningitis that maybe the parents of the little girl would be interested in. At the end of the day, it's their kid and not the doctors. In other words, even if we are not experts we can still keep an eye on "experts" and make a judgement on what they are doing.

Anyway, please pass on this link. It explains Fungal Meningitis in layman's terms.

Info on Fungal Meningitis

JaCkNiFe · « **Reply #22 on:** December 21, 2001, 12:45:00 AM »

Rightwng is a docter... ask him... but yes very sad

!!!!!

Lance · « **Reply #23 on:** December 21, 2001, 08:33:00 AM »

Sorry, Tac, no clues here. Hope she makes out okay.

stomper3 · « **Reply #24 on:** December 21, 2001, 11:52:00 AM »

Sad to hear!

My thoughts go out to you and your daughter!

Me being a doctor (though neither ID or Paed), this is how this comes out to me:

That girl obviously has a fungal meningitis, which is higly uncommon, besides in patients suffering from diseases affecting the immune system, such as AIDS, leukemia and/or other blood cancers. I also hear she has an extremely high white cell count, which could stand for a: serious infection in healthy person or b: Leukemia or other blood malignancies. The picture that is described sounds very much like a little girl with leukemia, secondary immune failure and cryptococcus meningitis. This infection is awful, and take a very tough medication to cure, i.e. Amphotericin B administered directly into the cerebrospinal fluid. It can through this regimen be cured, and the repeated spinal taps may very well indicate that intrathecal injections are being given.

To strengthen my hypothesis, id need some questions answered:

Was this girl sick before this incident occured? did she develop bruises easily, did she often get banal infections like otitis/tonsillitis? Was she anemic/pale before this incident?

These are suggestive of leukemoid diseases, which could very well be the centre in all this.

I would be happy to help, and if contact was made between me and this father, i could try to answer questions.

A surgeons view anyway.

God Bless

/stomp

Tac · « **Reply #25 on:** December 21, 2001, 10:48:00 PM »

check priv message stomper. Thnx.

Update for ye guys : They still have no clue what it is she has

Keep sending good vibes, every little bit helps.

FlyingDuckSittingSwan · « **Reply #26 on:** December 23, 2001, 12:18:00 PM »

Please keep us posted on the little girls progress, Tac.

drummaster · « **Reply #27 on:** December 24, 2001, 11:44:00 AM »

I am the father of the little girl, I would like to say a big thank you to all of you who have been praying, commenting, and personally contacting me via e-mail. It is a very trying time right now as I'm sure you are all aware. Kathy is not getting better, but the good news is she's staying stable. We are still unsure of what is causing all this. Her treating physicians are still running more tests, they had to move her IV to her foot because the veins in her arms are just worn out. They are going to do more tests this week after christmas. An x-ray scan, if that doesn't show anything and she doesn't start improving they want to inject her with dye and go into her veins with cameras and see if she has some sort of circulation dis-order. I'm not sure I want them to do that test, it is very frustrating and I am beginning to have lack of faith in this medical staff. I have given them alot of info that I've received from you guys and your links and comments. You know there's alot of test's they hadn't performed and probably never would have if it wasn't for your info. I thank all you once again and God bless you! Dennie

Pyemia · « **Reply #28 on:** December 24, 2001, 12:00:00 PM »

Good luck Drummaster.

Zygote

FlyingDuckSittingSwan · « **Reply #29 on:** December 24, 2001, 12:12:00 PM »

Well, I'm glad to hear she's at least stable. I hope all the best for your family and Kathy. I'm sure her christmas next year will make up for this one.