ty for thoughts...
it is not dehabiliating in any way for me right now... when i did have my flare up it was treated easily with meds, but the meds have NASTY side effects, including liver failure, and diabetes.
prednisone is one, and i FNG hate that stuff. you have to be weened off it, and it took 4 years last time, the whole time bloated, fat, and messed up body chemsitry.
the particular symptoms i have is fatigue, muscle soreness, and extreemly high fevers of 104-105 range. i peaked at 106.1 in the hospital one day... talk about freaked out nurses. they must have called in 20 different doctors trying to figure out WTF was going on. i went down to 107lbs back in the hospital too lol, you should have seen the pic, looked like someone from a concentration camp.
the real trick is now will it come back? some people have moderate symptoms for a long time, some have minor flare ups every few months / years, some like me have a major flare up, then nothing for a long time, then another, repeating. i am past the time (7 years) since the last, i may be done with ti.