Author Topic: Morpheus  (Read 64852 times)

Offline SKJohn

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Re: Morpheus
« Reply #495 on: January 15, 2010, 02:41:00 PM »

. . . im want to think that maybe the doctors are wrong, maybe they are giving up on him too soon. doctors have been known to be wrong on occasion right? i . . .

I couldn't agree more.  In 2008 I spent 4 months in the hospital due to a number of problems.  Since I had two broken legs, I was unable to get up to the bathroom and had a catheter in for like 3 1/2 months straight.  When I asked to have it removed, I had two different urologists assure me that because it had been in so long, I would never be able to urinate on my own again, that the bladder muscles were shot.  They said that I would have to use a straight cath 3-4 times a day to drain my bladder.  When I relayed that to my main hospital doctor, he told me that he knew some "special training" that I could do, and he would have me peeing on my own in a week or two.  He did, and it worked and before I left the hospital I was able to go on my own.

Moral of the story - remember that doctors "practice" medicine, and having the initials MD after your name does not mean that you are foolproof.  I believe that with the love and faith of Jeff and his family, and the hopes and prayers of people here, he will be able improve much more than the doctors predict.  I've seen it happen too many times to think otherwise.

Offline AAJagerX

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Re: Morpheus
« Reply #496 on: January 15, 2010, 03:31:56 PM »
Prayers sent. 

We're all pullin for ya Morph  :salute

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Offline BlauK

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Re: Morpheus
« Reply #497 on: February 03, 2010, 02:59:44 PM »
:confused:
Keep on fighting, Morph! Wishing all the best for the family as well.


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Offline trax1

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Re: Morpheus
« Reply #498 on: February 03, 2010, 03:56:50 PM »
Wow, sorry to hear the bad news about Morph, I was in a serious life altering accident about 12 years ago that left me in a wheelchair so I know how hard something like this can be.  Just never give up hope that he can get better, miracles do happen. :angel:
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Offline 38ruk

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Re: Morpheus
« Reply #499 on: February 04, 2010, 10:39:08 AM »
I can't believe this happened ....  

Why do bad things happen to good people ?  
« Last Edit: February 04, 2010, 11:10:36 AM by 38ruk »

Offline SlapShot

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Re: Morpheus
« Reply #500 on: February 04, 2010, 10:58:45 AM »
I can't believe this happened .... 

Why do bad things happen to good people ?  Was the person that hit him charged with anything?

No one hit him ... his head hit a tree after being thrown from his bike.
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Offline 38ruk

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Re: Morpheus
« Reply #501 on: February 04, 2010, 11:03:43 AM »
Oh man.   I guess i just assummed .

Offline W7LPNRICK

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Re: Morpheus
« Reply #502 on: February 04, 2010, 07:24:43 PM »
Don't give up hope. My wife, my best friend & loving companion was in a coma for 2 months. The neurologist told the family she would never walk, never talk, be completely dependent for the remainder of her life. She is a walking & talking miracle (can't shut her up). She lost 3 fingers & 8 toes to frostbite, and had 3 chest tubes and a feeding tube for months, but is now nearly mentally whole, very sharp witted, and cracks me up with one liner zingers constantly. Prayers for Morpheus.
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Offline SlapShot

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Re: Morpheus
« Reply #503 on: February 05, 2010, 07:35:47 AM »
Don't give up hope. My wife, my best friend & loving companion was in a coma for 2 months. The neurologist told the family she would never walk, never talk, be completely dependent for the remainder of her life. She is a walking & talking miracle (can't shut her up). She lost 3 fingers & 8 toes to frostbite, and had 3 chest tubes and a feeding tube for months, but is now nearly mentally whole, very sharp witted, and cracks me up with one liner zingers constantly. Prayers for Morpheus.

If I may ask ... how long was that process ? What type of therapy was used ? How long was she in the PT hospital ?

The reason that I ask is that Morph is supposedly in a very fine hospital but of all the times that we have visited him, we have seen him out of his room/bed once. They only allow 2 of us in the room at one time and he is constantly drugged. If he doesn't eat fast enough, they feed him and most times they just flat out feed him ... personally, I think that they have made him "lazy" ... our stance would be ... put that food in your mouth yourself or go hungry. He is still wearing a diaper because he will forget to ask to go to the bathroom ... I would have thought that they would take the same approach one would take while potty training a toddler ... ask every hour or more if he has to go to the bathroom or just get him up every hour and walk him to the bathroom and see if he will go.

This has frustrated the crap out of us. I am no brain specialist, but I would think that the more interaction along with changing venues would only stimulate him.
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Offline humble

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Re: Morpheus
« Reply #504 on: February 05, 2010, 07:53:30 AM »
Slap I'm in no position to speak with any authority on this specific to care and treatment. What I can say is to trust your gut. My son (17) was diagnosed with autism and moderate retardation at 2 1/2 back in the early days of what's now recognized as a world wide epidemic. We were literally told to leave him with the doctor and have him institutionalized since he would never be a "functioning adult". Today he has a 3.86 grade average is an "assistant manager" with the basketball team and looking forward to going to community college next year. Nobody will advocate for Morph like his friends and family, if it "feels wrong" to you it probably is. The only real similarity here is the brain and I can tell you that the plasticity of the brain is amazing but it takes constant work and prompting to "reprogram". Matt (my son) worked with a neurologist 3 days a week for over 3 years doing nuero-feedback therapy  (he was doing stuff like playing pacman with his mind (only "controller was his thoughts") 10 yrs before this stuff hit CNN. From what your describing he's being warehoused by an institution that feels the primary task is his comfort (and whats easy for them)...not his recovery.

The 1st thing I would do is prompt his parents to have a follow up meeting looking to specifically assess his current condition and to establish benchmarks, measurable goals and timelines. Example "Morph will feedhimself 27% of the time (up from ~10%) in 2 weeks...

Then set up an ongoing review and adjustment....as often as once a week in the beginning. If they won't do this then he's being "warehoused" not recovered. Interview facilities and check for a documented procedural process that actively sets benchmarks and looks to involve family and friends in the process of recovery...not exclude them from the business of warehousing.

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Offline Captain Virgil Hilts

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Re: Morpheus
« Reply #505 on: February 05, 2010, 08:17:27 AM »
^^^^^^^^^^^
Give the man a cigar. All to often people with brain injuries are just ignored if amazing recovery doesn't come in the first weeks or months. The truth is, it's a long road back from brain injury, and it takes focused intensive therapy. Think about it. When a child is born, and begins to mature, he gets the focus of adults most of his waking life. Constant attention is paid to "potty training" until the child gets out of diapers. Then there's "pre-school", where the child is constantly engaged by adults getting the learning process started, and preparing the child for ever more intense learning experiences. A person with a brain injury often "forgets" all they learned as a child, those basic skills.

Well, why in the world would any reasonable person think that all of those skills can be re-learned easily with the patient in a room by themselves with no real stimuli for all but 15-30 minutes of "therapy"? If an injured person can eat "some of the time", they almost surely possess the skills required, and only need to be taught and encouraged. The same thing applies to bathroom skills.

The problem is that most "rehabilitation facilities" do not have the staff or the desire to actually do the job. Many of them are poorly run "nursing homes" at best, and basically nothing more than a "dumping ground" (yeah, a sad thing to say) for people that no one wants to take care of anymore. They have a minimal staff, poorly trained, who are only interested in getting through the week and collecting a check. It's far easier for them to practically force feed a patient and change their diaper than it is to actually try to help that patient.
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Offline TequilaChaser

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Re: Morpheus
« Reply #506 on: February 05, 2010, 08:18:15 AM »

~snip~
Nobody will advocate for Morph like his friends and family, if it "feels wrong" to you it probably is.
~snip~
From what your describing he's being warehoused by an institution that feels the primary task is his comfort (and whats easy for them)...not his recovery.

The 1st thing I would do is prompt his parents to have a follow up meeting looking to specifically assess his current condition and to establish benchmarks, measurable goals and timelines. Example "Morph will feedhimself 27% of the time (up from ~10%) in 2 weeks...

Then set up an ongoing review and adjustment....as often as once a week in the beginning. If they won't do this then he's being "warehoused" not recovered. Interview facilities and check for a documented procedural process that actively sets benchmarks and looks to involve family and friends in the process of recovery...not exclude them from the business of warehousing.

humble/snaphook is absolutely right........ I don't think it could be expressed/viewed any better than how snap has commented
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Offline saantana

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Re: Morpheus
« Reply #507 on: February 05, 2010, 12:00:02 PM »
Don't give up hope. My wife, my best friend & loving companion was in a coma for 2 months. The neurologist told the family she would never walk, never talk, be completely dependent for the remainder of her life. She is a walking & talking miracle (can't shut her up). She lost 3 fingers & 8 toes to frostbite, and had 3 chest tubes and a feeding tube for months, but is now nearly mentally whole, very sharp witted, and cracks me up with one liner zingers constantly. Prayers for Morpheus.

Wow - what a story!

This discussion made me think of something I saw yesterday that made me reflect on my in comparison great ordinary life.

http://www.cnn.com/2010/HEALTH/02/03/concussions.teen.brains/
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Offline Knite

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Re: Morpheus
« Reply #508 on: February 05, 2010, 12:02:25 PM »
They have a minimal staff, poorly trained, who are only interested in getting through the week and collecting a check. It's far easier for them to practically force feed a patient and change their diaper than it is to actually try to help that patient.

I agree with just about everything you said except this part, which I feel is being a bit unfair to the people working at the facility. yes, in some cases the person is just there to collect a check. But in a lot of other cases, the person wishes they could do more, but because of how the system has been completely twisted legally, they cannot. Not to mention how often these people are trying to make a living caring for someone, getting a thanks of families no longer coming to visit their bed ridden relatives, punched, pulled, prodded, pooped, and puked on while trying to help. Add to the fact that most of these places are insanely too low staffed because the place is not making enough, and that sometimes places like nursing homes are home to people who are severely mis-diagnosed, and you've got a lot of reasons for the care not to be all that great beyond the employees not caring. Yes, our heathcare system can use a lot of help, but it's not always as simple as other people not caring.

Plus, no one will ever care for someone more than the friends and family of the individual. I'm with Humble... if you're unsure, there's no shame in asking for other opinions or trying to find "another way".
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Offline Strip

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Re: Morpheus
« Reply #509 on: February 05, 2010, 12:09:15 PM »
If I may ask ... how long was that process ? What type of therapy was used ? How long was she in the PT hospital ?

The reason that I ask is that Morph is supposedly in a very fine hospital but of all the times that we have visited him, we have seen him out of his room/bed once. They only allow 2 of us in the room at one time and he is constantly drugged. If he doesn't eat fast enough, they feed him and most times they just flat out feed him ... personally, I think that they have made him "lazy" ... our stance would be ... put that food in your mouth yourself or go hungry. He is still wearing a diaper because he will forget to ask to go to the bathroom ... I would have thought that they would take the same approach one would take while potty training a toddler ... ask every hour or more if he has to go to the bathroom or just get him up every hour and walk him to the bathroom and see if he will go.

This has frustrated the crap out of us. I am no brain specialist, but I would think that the more interaction along with changing venues would only stimulate him.

Based on this post alone I would tell you that looking for another option is probably for the best.....

Strip