Author Topic: Simaril come here please  (Read 558 times)

Offline redman555

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Simaril come here please
« on: December 08, 2010, 06:43:31 PM »
Question for you.  My doc said that it was most likely a seizure, and that weird feeling I have been getting last few years (which I felt seconds before the seizure) was called an "aura".  I guess its like how peoples left arm gets tingly before a heart attack, its kinda like a warning sign but every time you have one doesn't mean you WILL have the seizure, means its possible.  Well I am meeting with the Neurologist on Friday and was wondering if maybe you could answer a question.  What are the chances I will never be able to see movies in theaters and play games again?  From what I looked up most people that get seizures can still play games its just have to have all lights in room on and when on meds?

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« Last Edit: December 08, 2010, 06:46:21 PM by redman555 »
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Offline Tupac

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Re: Simaril come here please
« Reply #1 on: December 08, 2010, 06:49:19 PM »
One of my dads best friends has epilepsy, and as long as he takes his pills he doesn't have a problem.
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Offline fbWldcat

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Re: Simaril come here please
« Reply #2 on: December 08, 2010, 06:53:05 PM »
In medicine it really just depends on how you react, I don't think Simaril can accurately judge how you will respond unless he knows your record and how you respond to medicines and certain environmental conditions. (Sim, you can correct me if need be, after all, I'm only an aspiring doctor).
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Offline redman555

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Re: Simaril come here please
« Reply #3 on: December 08, 2010, 10:35:01 PM »
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Offline Melvin

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Re: Simaril come here please
« Reply #4 on: December 09, 2010, 10:22:59 AM »
Good luck Bob.

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Offline Jayhawk

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Re: Simaril come here please
« Reply #5 on: December 09, 2010, 12:02:12 PM »
You might try a private message to get his attention, however, I agree that each case is going to vary.  Give it some time and you'll figure out what you can and can't do.  Since you had an aura the first time, I would suspect you'll probably experience them any other reoccurring times and be aware to avoid certain activities.

Good Luck.
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Offline Simaril

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Re: Simaril come here please
« Reply #6 on: December 09, 2010, 01:24:37 PM »
Hi.

Sorry I didn't see this yesterday! Hope everything turns out OK with the neurologist.

Now, keep in mind that without actually seeing somebody and their tests I can't make an actual diagnosis or discuss specific treatment. So everything that follow should be taken as a discussion of general information, nothing more. That being said, I'd agree with those already posting - you can't answer your question for sure yet. There is a lot of individual variation, and in the end time will tell. However, I sure wouldn't cancel the AH subscription yet!

Not everyone with seizures is sensitive to light stimulation, and those who are affected by it can be affected to varying degrees. In general, strong flashing is going to be more likely to trigger than slowly flickering lights...so for example a dance club's strobe may be out of the question, but a video game with fairly consistent graphics and lighting may be fine. Some people don't have any problems, while some need to avoid games with rapidly changing screens or lighting. Even if a person's seizures ARE easily triggered by flashing lights, medication can calm that down significantly. Hard to predict what will turn out for a given person.

If someone already HAD a seizure related to flashing lights, it's obviously more likely that their episodes may be light sensitive. So it would be good to stay away from potential triggers (like video games) until more is known. The neurologist may be able to say more specifically after the EEG, which should hopefully give an idea of how stable the focus area is. Be aware that even in people who have outright epilepsy, it may take several EEG tests until they show what's happening for sure  -- even an initially negative EEG does not rule out epilepsy.

And to clarify some terms: A seizure is a single episode of an abnormal electrical storm in the brain. They usually start from an irritable focus, an area of nerve tissue that is "twitchy" for whatever reason. Once the focus is triggered, the electrical activity spreads from there until the seizure reaches its full stage. Seizures are almost always self limited, fading out on their own after a few minutes. Most significant seizures will be followed by a period of just feeling totally washed out, tired, and stuff like that. (Called the "post-ictal phase.") This happens because the cells that were getting repeatedly triggered to fire by the seizure are exhausted from being overstimulated during the spell.

Epilepsy is a condition that leaves people likely to have seizures repeatedly over time. Some people with epilepsy have tons of seizures, some only a few even if they are off treatment. Predicting how thiings will work out isn't always easy, though if there are abnormal tissue areas visible on MRI (which sees brain structure) or if there are whopping big electrically abnormal areas on EEG (which maps out electrical activity) it's more likely that there will be ongoing problems.

Gotta run - will check back later today.

Simaril
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« Last Edit: December 09, 2010, 01:55:05 PM by Simaril »
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Offline Jayhawk

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Re: Simaril come here please
« Reply #7 on: December 09, 2010, 01:50:08 PM »
So I am I wrong in saying that this could simply be a situation where the factors lined up (illness or otherwise) and his exposure to the convulsive agent (the video game) just triggered it?  Depending on results from the EEG, his life might not change much more than being aware of what the aura feels like before a seizure just in case another one comes on.
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Offline Simaril

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Re: Simaril come here please
« Reply #8 on: December 09, 2010, 02:01:14 PM »
Most of the time, the aura is not so much a warning of a vulnerable period; it's more of the ramp up to a seizure. In many patients, if they get an aura it means a seizure is very very likely in the next few minutes. So for many people, if they get an aura but a full seizure doesn't happen, it's more like a flintlock that misfired - the trigger got pulled, but the gun didn't go off.

So you can't rely on the aura as a way to tell when it's not safe to play video games or to drive. Course, YMMV.
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Offline redman555

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Re: Simaril come here please
« Reply #9 on: December 09, 2010, 02:58:44 PM »
Ok thanks for the information sim.  Appreciate your time.


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Offline Dichotomy

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Re: Simaril come here please
« Reply #10 on: December 09, 2010, 03:02:33 PM »
Sims one of the best guys I know.  Now yall help me drag him back into the game :D
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Offline skribetm

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Re: Simaril come here please
« Reply #11 on: December 09, 2010, 04:45:47 PM »
Good luck tomorrow, Bob. We're all right here for ya.

Offline redman555

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Re: Simaril come here please
« Reply #12 on: December 09, 2010, 05:46:20 PM »
Good luck tomorrow, Bob. We're all right here for ya.


Thanks

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