Not gone yet but it has been a challenge.
I had decided to do the Hospice thing but as I got deeper into they have some policies that are not right for me just yet. Hospice is just for "comfort" at the end, you get pain meds, etc. but no diagnostic or curative care.
In late summer I had a morphine pump stuffed under my left flank, it has a catheter that puts a tiny dose of medication along the spine and does a good job of keeping things under control. It isn't something you get high using, it is a very small constant dose and if need be I can do a "bolus" dose. Hospice considers that as curative care and want me to use oral meds with high risks of addiction, sedation, constipation. WTF?!
I really need to go flying....
We're just going to deal with this ourselves...what could possibly go wrong?