Author Topic: Rheumatoid Arthritis  (Read 784 times)

Offline eskimo2

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Rheumatoid Arthritis
« on: January 10, 2008, 06:59:43 PM »
Statistically, there are probably a few others out there who also have it.  I just found out today that I have RA and need to start shopping for a Rheumatologist; any advice?

Offline Bodhi

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Rheumatoid Arthritis
« Reply #1 on: January 10, 2008, 08:48:24 PM »
Eskimo,
I have an uncle that has it really bad, but unfortunately his only coverage is to go to the VA to have it checked.

I'll ask him tomorrow what he'd choose to do if he had his choice and good insurance.


Good luck, RA appears to be a very dibilitating form of arthritis if it gets real bad.
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Offline JB73

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Re: Rheumatoid Arthritis
« Reply #2 on: January 10, 2008, 08:58:12 PM »
Quote
Originally posted by eskimo2
Statistically, there are probably a few others out there who also have it.  I just found out today that I have RA and need to start shopping for a Rheumatologist; any advice?
#$%^ sucks

I have Stills Disease

http://en.wikipedia.org/wiki/Still%27s_disease

same class / thing, on heavy meds now and I'm 34. oh yea this is the 3rd episode I've had, first at 17, next at 24 and now.

don't know what to say but I feel for you, and know the deal.... most just don't get the pain and uncomfortable-ness that goes with it.
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Offline Dago

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« Reply #3 on: January 10, 2008, 09:27:34 PM »
They thought I had it at 14, but never reoccured.   I had a knee go bad from a high school football injury, ended up locking up, etc etc, but after therapy it got better, and no reoccurence.  Good luck Eskimo.
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Offline Ripsnort

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« Reply #4 on: January 10, 2008, 10:42:57 PM »
'Luck Eskimo. Sorry to hear about you and JB73's condition. That sucks. :(  My double shoulder arthritis doesn't hold a candle to that stuff.  Not sure if it will help your condition, but I've been using Glucosamine for 7 years now. I couldn't work out without the stuff...

Offline LePaul

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« Reply #5 on: January 10, 2008, 11:58:02 PM »
That sucks, inherited?

Offline Blooz

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« Reply #6 on: January 11, 2008, 04:48:56 AM »
Be ready for little relief.

Most of the good drugs have been taken off the market. Mine was Bextra.

One good days I just take a couple normal aspirins.

On bad days it's handfulls of Motrin.
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Offline Fulmar

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Rheumatoid Arthritis
« Reply #7 on: January 11, 2008, 07:37:07 AM »
Quote
Originally posted by Blooz

On bad days it's handfulls of Motrin.


Must be tough on your stomach.
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Offline eskimo2

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Rheumatoid Arthritis
« Reply #8 on: January 13, 2008, 11:42:53 AM »
Thanks for the concerns everyone.

Three months ago I saw my doctor for this, he prescribed some anti-inflammatory meds and I went in for nerve conductivity tests.  The tests showed normal.

Tuesday I went back and he prescribed a blood test.  I found out that I tested positive for RA from a phone call on Thursday night from my doctor’s secretary and was told to find a rheumatologist.  Of course I Wikipedia’d RA and was pretty floored by what I read.  One third of folks with RA are no longer working after five years; half are disabled by ten years.  Lifespan is shortened by 5 to 20 years.  It’s very painful and life becomes all about managing the pain.  It’s incurable and crippling.  Women are three times as likely to get it, but men tend to get it worse.  It can strike at any age.  It’s not from wear and tear; it’s from the body’s immune system attacking the joints and bones for some unknown reason.  That’s some pretty scary stuff.

On Friday I talked to a number of people at work who know people with RA and one co-worker who has it.  The only person known by anyone who ended up in a wheelchair was someone who was overweight and never did anything about it.  Our Kindergarten TA has had back and knee surgeries, but can still walk and work.  My principal’s friend has had it for a decade, but it’s only in his hands.  Medications have helped him greatly.  

My wife set up an appointment with a rheumatologist on the 28th and one with my regular doctor Friday afternoon.  My doctor said that my blood tests results were just into the RA zone, not severe.  I don’t know if that means that the disease is just beginning though.  He said that he has many patients with RA and none are in wheelchairs.  He thought that the Wiki stats sounded pretty high and thought that most of the people who would end up in wheelchairs would be those who ignored it.  We are most likely catching it early and I’m motivated to exercise, alter my diet and try meds or whatever to minimize its impact.

Right now the joint problems and pain are limited to my hands; especially my pinkies and thumbs.  I have good strength, but sometimes a light duty action will send a severe jolt of pain, like a popping tendon.  I also have rheumatoid nodules on some pinkie and thumb joints.  A month ago I went to a RA website and took the self diagnostic test.  While some things looked spot on, others really didn’t.  The biggie is that a very common trait of RA is morning stiffness; people are very stiff in the morning for several minutes or hours; I don’t have that and figured RA wasn’t my problem.  Everything I’ve read since has indicated that morning joint stiffness is a big issue with RA.  

Within the last day, however, it’s occurred to me that while I may not have stiffness, I have a heck of a lot of back pain.  It’s only in the morning and lasts for a few hours.  I’ve been dealing with this for the past five years; I’ve seen doctors and chiropractors for it.  They all said that I had degenerative disks.  X-rays of degenerative disk damage and RA damage look very much alike to me.  I now wonder if I’ve had RA for the past five years, my back was phase one and my hands are now phase two?

Although there are some drugs out there that help combat RA, many of the potential side effects are as severe or even worse.

JB73,
I feel your pain, somewhat.  Best of luck to you.

LePaul,
My mother has osteoarthritis; I’m not sure heredity can span different forms of arthritis.

Offline Bodhi

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« Reply #9 on: January 13, 2008, 12:01:17 PM »
Eskimo,

Man I feel for you.  Prayers are with you.

I talked to my uncle, and he said just find the best way for you to manage pain.  He does not do much else besides the VA as it is too depressing for him as he can not afford anything else.

Again best of luck for you.
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Offline SirLoin

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Rheumatoid Arthritis
« Reply #10 on: January 13, 2008, 01:24:51 PM »
Sorry to hear that Eskimo.

I hope your health insurance doesn't screw you around.

There is a co-worker at Ford who's had RA for at least 15 years...other than her doing mostly light duties you wouldn't know it.
« Last Edit: January 13, 2008, 01:30:34 PM by SirLoin »
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Offline eskimo2

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Rheumatoid Arthritis
« Reply #11 on: January 13, 2008, 01:42:15 PM »
Quote
Originally posted by SirLoin
Sorry to hear that Eskimo.

I hope your health insurance doesn't screw you around.

There is a co-worker at Ford who's had RA for at least 15 years...other than her doing mostly light duties you wouldn't know it.


That's good to hear, not that someone has RA, but that they live a relatively normal life.  Ironically, I get as much pain from light duty as I do from hard.  I went for a 25.7 mile bike ride yesterday and only had a few minor pain spikes.  Nothing major was sore afterward.

Offline Dago

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Rheumatoid Arthritis
« Reply #12 on: January 13, 2008, 01:52:27 PM »
I hope this doesn't interfere with your photoshops Eskimo, you have a talent for really funny stuff.
"Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways, chocolate in one hand, martini in the other, body thoroughly used up, totally worn out and screaming "WOO HOO what a ride!"

Offline Reschke

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Rheumatoid Arthritis
« Reply #13 on: January 13, 2008, 03:05:31 PM »
My mother has it and has had it for over 25 years now. She had all the joints in her hands replaced about 20 years ago, both knees replaced and both wrists replaced just to be able to function closer to normal.
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Offline JB73

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« Reply #14 on: January 13, 2008, 03:05:52 PM »
eskimo what is odd about my disease is I went 9 years without a symptom, and was living life like normal. once I got sick again it was really harsh until the meds take effect.

right now I feel fine, just a bit weak, but the side effect of the meds is the bad part. hopefully once I get "better" and off meds I won't have another relapse, but there is no way to tell.


with TRUE RA you are almost always in pain...

but be sure to not get freaked out about this. if all the did was a blood test they probably did a check for the "RA gene". that is a very misleading test, and only about 20% of the positives really get full blown RA. there are many variants too, so until you really see a specialist and some treatment you won't know.


good luck and my prayers will be with you.
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